Pediatric Heterotaxy Program
nationally ranked care, close to home
Pediatric Heterotaxy Program
Conditions We Treat
Atrial isomerism
Atrioventricular septal defects (AVSD)
Double outlet right ventricle
Congenital heart disease
Heart block
Pediatric arrhythmias
Single ventricle defects
Sinus node dysfunction
Biliary Atresia Splenic Malformation (BASM) syndrome
Total anomalous pulmonary venous return (TAPVR)
Transposition of the great arteries
Asplenia
Polysplenia
Pediatric biliary atresia
Heterotaxy syndrome
Pediatric intestinal malrotation and volvulus
Primary ciliary dyskinesia (PCD)
Situs inversus totalis
Treatments & Services
Complex biventricular repair
Feeding therapy after heart surgery
Genetic testing and genetic counseling
Heart transplant
Kawashima surgery (for single ventricle patients with a type of heterotaxy called left isomerism)
Electron microscopy analysis of ciliary structure
Indocyanine Green test (for biliary atresia)
LADD procedure (for intestinal malrotation)
Pediatric liver transplant
MMP-7 test (for biliary atresia)
Nasal nitric oxide testing (for PCD)
Splenic and immune function testing
Upper digestive tract exam using fluoroscopy
More Details
Cutting-edge care at one of only two heterotaxy programs in the nation
At Children’s Health, your child receives care from some of the country’s most experienced and innovative heterotaxy experts. We use advanced tests that almost no one else offers.
For example, our team developed two tests for biliary atresia that are much faster and less invasive than the standard method. We also offer rare tests for primary ciliary dyskinesia (PCD), a lung condition that can lead to frequent infections. PCD is common for children with heterotaxy syndrome, but many aren’t diagnosed until they come to us.
A multidisciplinary approach to help kids thrive
Children with heterotaxy syndrome need care from a wide range of specialists — from heart and lung experts to experts in gastroenterology and other areas. Our program provides a central hub for these specialists to coordinate their decisions and make the best plan for your child.
For parents, this hub helps you manage the many tests, scans and treatments your child may need. We’re your single point of contact, connecting you with local and national experts your child needs.
Our commitment to ongoing heterotaxy research
Our team leads research to better understand heterotaxy syndrome and improve treatment. Some projects explore which genes cause the syndrome and lead to certain symptoms. These projects will help doctors identify a child’s individual needs and recommend the best treatments for them. Other research helps medical teams test for lung and spleen problems that are common with heterotaxy.
Heterotaxy syndrome is a genetic condition that affects how a child’s organs develop. Some children have minor problems as a result. Others need multiple surgeries and lifelong care.
Children's Health℠ is proud to be one of only two centers in the country with a multidisciplinary program dedicated to children with heterotaxy syndrome.. We have experience in providing the best care for your child’s health while managing this condition. That experience includes newborns who need surgery right away to survive.
Our expert team uses advanced tests and treatments to help your child grow as strong and healthy as possible. We also do research that helps other doctors identify and treat different aspects of the syndrome.